Brooklyn Developmental Disabilities Council

CP State, NYDA Launch Guardians of Medicaid Campaign

CP State and its partners in New York Disability Advocates have launched the Guardians of Medicaid campaign, a statewide effort to rally support for protecting and strengthening Medicaid for individuals with disabilities.

The campaign kicked off with a powerful moment on Friday, March 21, when Congressman John Mannion became the first elected official to declare himself a Guardian of Medicaid at the “Invest In Us” Rally for Disability Services in Syracuse. His commitment underscores the urgent need to defend Medicaid from proposals that would weaken this essential program.

Recruiting Champions for Medicaid This week, all New York congressional representatives will receive a Guardians of Medicaid recruitment packet designed to illustrate the critical role Medicaid plays in their districts. Each packet includes:

• A district-specific Medicaid impact map
• Signage and stickers to display in congressional offices
• A letter urging representatives to become Guardians of Medicaid

The letter emphasizes Medicaid’s role as more than just a safety net—it is a lifeline for people with disabilities, ensuring access to healthcare, independent living supports, and essential services. It warns against proposals to cut, cap, or restructure Medicaid, highlighting the devastating consequences such actions would have on individuals, families, and disability service providers who rely on Medicaid funding.

The Stakes for New York New York’s disability service system is almost entirely dependent on Medicaid, with federal-state funding enabling crucial programs like home- and community-based supports, specialized therapies, and personal care assistance. Any reduction in federal contributions would force the state to make impossible choices—either dramatically increase spending or cut services, leading to job losses in the disability sector and placing unbearable strain on families.

The campaign also pushes back against misleading claims that Medicaid cuts are necessary to combat waste and fraud. As the letter states, the largest Medicaid expenditures support children, seniors, and people with disabilities. Real efficiency efforts should focus on administrative streamlining and payment integrity, not cuts that endanger lives.

A Call To Action

The Guardians of Medicaid campaign challenges New York’s congressional delegation to take a stand. Lawmakers are being asked to publicly commit to protecting Medicaid and reject any policy that threatens its integrity.

“As a Guardian of Medicaid, you have the power to protect those who cannot fight this battle alone,” the letter states. “We urge you to reject any proposal that weakens Medicaid and instead advocate for policies that strengthen access to care and support for people with disabilities.”

CP State and New York Disability Advocates are encouraging advocates, families, and service providers to join the movement and hold their representatives accountable. Together, we can ensure Medicaid remains strong for those who need it most.

Click here to urge your representative to be a Guardian!