• CP State, NYDA Launch Guardians of Medicaid Campaign

    CP State and its partners in New York Disability Advocates have launched the Guardians of Medicaid campaign, a statewide effort to rally support for protecting and strengthening Medicaid for individuals with disabilities.

    The campaign kicked off with a powerful moment on Friday, March 21, when Congressman John Mannion became the first elected official to declare himself a Guardian of Medicaid at the “Invest In Us” Rally for Disability Services in Syracuse. His commitment underscores the urgent need to defend Medicaid from proposals that would weaken this essential program.

    Recruiting Champions for Medicaid This week, all New York congressional representatives will receive a Guardians of Medicaid recruitment packet designed to illustrate the critical role Medicaid plays in their districts. Each packet includes:

    • A district-specific Medicaid impact map
    • Signage and stickers to display in congressional offices
    • A letter urging representatives to become Guardians of Medicaid

    The letter emphasizes Medicaid’s role as more than just a safety net—it is a lifeline for people with disabilities, ensuring access to healthcare, independent living supports, and essential services. It warns against proposals to cut, cap, or restructure Medicaid, highlighting the devastating consequences such actions would have on individuals, families, and disability service providers who rely on Medicaid funding.

    The Stakes for New York New York’s disability service system is almost entirely dependent on Medicaid, with federal-state funding enabling crucial programs like home- and community-based supports, specialized therapies, and personal care assistance. Any reduction in federal contributions would force the state to make impossible choices—either dramatically increase spending or cut services, leading to job losses in the disability sector and placing unbearable strain on families.

    The campaign also pushes back against misleading claims that Medicaid cuts are necessary to combat waste and fraud. As the letter states, the largest Medicaid expenditures support children, seniors, and people with disabilities. Real efficiency efforts should focus on administrative streamlining and payment integrity, not cuts that endanger lives.

    A Call To Action

    The Guardians of Medicaid campaign challenges New York’s congressional delegation to take a stand. Lawmakers are being asked to publicly commit to protecting Medicaid and reject any policy that threatens its integrity.

    “As a Guardian of Medicaid, you have the power to protect those who cannot fight this battle alone,” the letter states. “We urge you to reject any proposal that weakens Medicaid and instead advocate for policies that strengthen access to care and support for people with disabilities.”

    CP State and New York Disability Advocates are encouraging advocates, families, and service providers to join the movement and hold their representatives accountable. Together, we can ensure Medicaid remains strong for those who need it most.

    Click here to urge your representative to be a Guardian!

  • OPWDD recently issued an updated Respiratory Viral Transmission Infection Control Guidance for COVID-19, Influenza and Respiratory Syncytial Virus (RSV) in Community-Based Settings and Programs

    The full guidance can be found on OPWDD’s website by using the following link:

    https://opwdd.ny.gov/system/files/documents/2025/04/opwdd-respiratory-viral-infection-management-community-final-4.15.25_acc.pdf

  • Yesterday was the April Meaningful Day Committee with some great information shared on accessing services from some knowledgable professionals.

    Please join us and participate in future meetings as there are many questions we get asked and this is a great forum to come and obtain support and connect with not just professionals, but other families in similar situations with similar questions and a variety of experiences.

    What is the Meaningful Day Committee?

    This committee will focus on promoting the well-being and autonomy of individuals with intellectual and developmental disabilities across their entire lifespan. We will explore initiatives that address various stages of life, from birth through childhood, and adulthood into aging, by touching on topics such as; children’s services, transition services, day habilitation, and employment services. Our aim is to combine insight and resources from self-advocates, families, providers, care managers, employers and more, to tackle issues, provide clarity and guidance, and help navigate these complex systems. Most importantly, we can combine our voices in the effort to help advocate for change within the systems.

  • MTA Celebrates Autism Acceptance Month with Subway Announcements Recorded by People With Autism

    “The Metropolitan Transportation Authority (MTA) today invited children with autism to the Fulton Center subway station in Lower Manhattan to listen to station announcements they recorded as part of a comprehensive public service campaign in celebration of Autism Acceptance Month.  

    In partnership with New York City Public Schools and INCLUDEnyc, students with autism from both private and public organizations recorded subway station announcements advising riders to follow subway rules of conduct and reminding listeners that it is Autism Acceptance Month. Family members of MTA employees and families with My Time also participated in recording announcements. Children were accompanied by family members to meet MTA leaders, a car equipment maintenance supervisor, a train service supervisor, a subway conductor, a platform controller, a bus operator, a customer service agent and other transit workers to ask them questions and listen to their announcements being played.”


    See the full article by clicking the link below:

    https://www.mta.info/press-release/mta-celebrates-autism-acceptance-month-subway-announcements-recorded-people-autism

  • Save The Date: Justice Center Family Engagement Session

    2025 Justice Center Family Engagement Series
    April 29th – May 1st, 2025

    This series offers three opportunities to receive an overview of the Individual and Family Support Unit and the services and support provided to people receiving services and family members/personal representatives as they navigate the investigative process. A focus on Effective Advocacy will be provided.

    Click Here To Register!